Jersey Girl, Texan Heart: Rocksbox Part 2 and a Discussion about CF
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Rocksbox Part 2 and a Discussion about CF

4:00 AM





Scarf:  Born Pretty // Top:  Ralph Lauren (Ewa Bazaar) // Shorts:  Ralph Lauren (Ewa Bazaar) // Shoes:  UGG (Marshalls, old) // Bangles:  Lilly In Pink // Earrings, Necklace, Pinky Ring:  Rocksbox // Sunnies:  Gucci // Clutch:  Gifted (Ellen from Ask Away)

Today I’m featuring my newest additions from Rocksbox.  Rockbox is perfect if you’re looking to “rent” jewelry and possibly buy it afterwards for an affordable monthly membership fee.  If you want to read more about this you can also click here which is my first post about Rocksbox. **Please be advised that I was given a free three month membership to review Rocksbox products however all opinions are my own.

Now, I wanted to talk about something with May being Cystic Fibrosis Awareness month, it’s also the reason why I’m wearing purple in this post since just like Epilepsy Awareness we share the purple ribbon.  If you’ve been following this blog since day one you may have come across a post almost two years ago about my friend Allison.  If you didn’t you can read it here.  Allison was diagnosed with Cystic Fibrosis at the young age of two months old.  If you don’t know what CF is I’ve provided you a few key points from Allison’s first post here on the blog.  If you don't want to read through all of that at least scroll to the bottom underneath her picture for the important stuff!

Cystic fibrosis is a chronic-on-terminal recessive genetic disorder that mainly affects the lungs, pancreas, liver, and intestines. It is characterized by abnormal transportation of chloride and sodium across the CFTR gene, which results in the inability to break down mucus in the body, which in turn leads to thick, sticky secretions. This mucus then "clogs" the internal organs, which most commonly leads to frequent respiratory infections, which can lead to pneumonia. If left untreated or treated ineffectively due to drug sensitivities or a bacterial infection that is insusceptible to antibiotics, the infection can then become fatal. The majority of deaths related to cystic fibrosis are those who succumb to severe respiratory infections. 

It causes scarring in the lungs, which gets progressively worse with age, causing the affected's lung capacity to lessen over time, making it more and more difficult to breathe on their own. Some patients are healthier than others, and there are different levels of severity, but it is not uncommon for a person with CF to rely on an oxygen supply as they get older. 

It also affects the entire digestive system: that sticky mucus blocks ducts in the digestive organs that are necessary to transport specific enzymes throughout the body to aid in the breakdown of food and the absorption of nutrients. This is why most people with cystic fibrosis are very thin, anemic, and just overall deficient in almost every vitamin; in other words, malnourished. Their bodies can't absorb everything they need to stay healthy like average Joe's body does. To help keep nutrition up, CF patients are given a supplementary pancreatic enzyme to make up for the lack of naturally-occurring enzymes in their bodies, which needs to be taken with food. And not once a day, either. It's every. Time. They. Eat. Anything. These enzymes are usually taken alongside high doses of vitamins and supplements, which are usually only taken once or twice daily, to ensure the absorption of all the nutrients their bodies can get.

Because of the lack of dietary health, a CF patient's diet is usually very high-calorie, high-fat, and high-protein. Most CF patients are conditioned since a young age to never put the fork down, because that's how quickly they can lose weight. So, for a Cystic, they average between 3-5 meals per day, plus whatever they snack on in between. Now, figure about 5 enzyme pills per meal, and about 3 for snacks, give-or-take, plus vitamins and other assorted pills needed for CFRD (cystic fibrosis related diabetes), and other digestive issues. Plus add the therapy sessions on top of that, that's a lot of medications to squeeze into one day!

Now, you may be wondering why am I bringing this up again if I already talked about it once before.  It’s taken Allison a lot to finally start a go fund me page.  She was so against it for the longest time but her bills finally caught up with her.  She needs to raise money in order to be able to pay her medical bills.  If you have even a dollar to give her she would greatly appreciate it.  I’m working on getting an update post for all of you from Allison because since the above post I know her lung capacity has dropped.  When she wrote this post she was at 50% percent.  Now it’s a lot worse.  I do however give her props for being a normal 20 something year old minus all of the medications she has to take and all the food she eats.  



Everyone, this is Allison.  This fighter has Cystic Fibrosis and she needs your help to raise some money to pay off medical bills.  If you would like to donate, her Go Fund Me link is here.  She explains more about her situation on that page, so if you read it and think it's worth a share please do!  She's been in my life since my sophomore year of high school (over ten years ago, but who's counting) and it breaks my heart to see her going through such tough times.  I love you Allison!


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8 comments

  1. Beautiful purple shorts. I love how they're so flattering on you because of the longer length! My heart and prayers go out to your friend. Her dress is gorgeous, too!

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  2. I can't even imagine what it's like to take all of those supplements and pills. Just taking the amount I have to everyday makes me nauseous and I hate it but I can't even imagine taking that many. My dad has more health problems than me and he is so used to having to take so many pills that he can swallow like 20 pills all at once without water. I'll definitely be praying for Allison.

    http://dogmomchic.blogspot.com/

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  3. Allison looks fantastic in such a pretty floral maxi. Love your fun, colorful outfit, also. Great shorts and scarf, my friend. =)

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  4. Your Rocksbox look is amazing. I love the purple shorts too. Thanks for sharing Allison's story. I will support on her go fund me. Praying for her. http://fashionablyidu.blogspot.com/

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  5. I love rocksbox! I had no idea that they were raising awareness for that this month!
    www.amemoryofus.com

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  6. Rocksbox is a really nice choice my dear! Love your shorts and his color!!! Have a nice day, kisses,
    Eni

    Eniwhere Fashion
    Eniwhere Fashion Facebook

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  7. What a lovely post Monica, I didn't know CF was this serious! I will definitely donate something, you have such a passion and love for your friend and that is awesome! Lovely outfit and the sporting of purple!
    Thanks for linking up to "Bloggers Who have Inspired Me" today.
    Rachel xo
    Bloggers Who Have Inspired Me link up is LIVE
    Garay Treasures

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  8. Hi sweetie!
    Love this look, and your hair is so versatile, love the red extensions, you can wear any color! Great colorful outfit too! I am sorry to hear about your friend, Allison, but it sounds like she is a fighter, and from someone who experiences a chronic rare illness, part of feeling better is attitude. She looks like she has a positive outlook.

    Thanks for linking up with Turning Heads Tuesday
    jess xx
    www.elegantlydressedandstylish.com

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Thank you so much for commenting! I love hearing from each and every one of you. I try my best to comment back or comment on your blogs as well, if you don't see a comment don't worry! I check out everyone's blog who leaves love on mine :)

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